Dear Special Needs Parent,
I know some days are tough. You are beaten down. Your child is having a meltdown. Your teenager is having challenges at school and your young adult is desperately trying to be placed in a job or find somewhere to live.
No matter what the obstacle is, we’ve all been there, special need parent or not. We want to run away at times because we wonder to ourselves “will it get better? CAN it get better? Your son can’t be bathed because of the texture of the water. Your daughter hasn’t said her first word and she’s just turning four-years-old.
The spectrum of disability is so wide and with each individual diagnosed comes some struggle for that individual’s parents.
It’s a struggle that I’ve never had to deal with from the parent side of the spectrum but as someone who helps talk parents through these challenging times I often tell them about my own personal journey
My journey began 23-years-ago when I was diagnosed with autism. For me, between sensory issues, emotional challenges, motor delays, cognitive issues, not speaking for the first three-years of my life, being scared to show affection to my loved ones with the fear of going into overload, my parents definitely had THOSE days while trying to help me succeed.
It can be really easy to tell yourself it’s something that YOU did. To say that YOU are not doing everything you can to help your child.
When that time comes though I want you to take a second…and pause..
You see everything in life is not always black and white. Not all of us are going to be math geniuses (i.e. Rain Man) and some will need more help than others along the way. My own personal journey has taken me from one side of the spectrum, where nothing seemed possible for my future to a point where I could graduate from college, get a full time job and now speak professionally about growing up with autism.
My personal advice is to take those little successes as they come and cherish each and everyday you are blessed enough to have with your loved ones. If you need to scream every once in a while, do it.. Cry along the way too. Sometimes more than anything we need to remember we’re human…
And that’s ok…
Regardless where the road takes you, do so by knowing that we’ve all been through our own challenges in life. Hope is coming. It may not be today, or tomorrow, but as long as we have “community” will never be alone. Learn to embrace the stories of those around you and live a life where we can pick each other up in their time of need.
After you’re done reading this and the next time one of THOSE days hits you right in your face that you remember one thing. Whether your child is able to tell you or not…
I hope you know you’re making a difference…